August 2006 - Posts

• August 30th, 2006

  Samantha had an MRI of her brain and spine done today. She has an appointment for a PET scan on friday morning. Tomorrow morning she will start her treatment so we expect to get the MRI results then. We will spend four hours at the clinic as it is our first day to start learning. We will spend time there every day from now until we leave to go home. If all goes well we will be spending about 21 days here. Please pray that she tolerates & responds to the medicine. Will update tomorrow and let you know how it went. Love to all, Audra, Kurt, Christopher, & Samantha Posted Aug 30 2006, 10:52 PM by admin with no comments

• August 29, 2006

  Posted Aug 29 2006, 10:52 PM by admin with no comments

• August 28, 2006

  Samantha had her evaluation today at the Burzynski clinic. It was a long day for all of us but she did real well. We did a lot of talking with doctors and nurses, she had a physical and labs done. Her labs came back good enough to start treatment we are just waiting on the approval of the FDA (which is standard) and her MRI and she will be able to get going on it. We are hoping for a start date of thursday. From what we were told today she will be spending about 2 hours a day M-F in the clinic and about 45 minutes on Saturday and Sunday. These visits will consist of Kurt and I being taught how to access and flush her port how to change her medication bag (which she will carry in a back pack) and drawing labs. They will start out with a low dose of medication and work up depending on how she tolerates it. They will moniter her white counts and platelets 2 times per week and her potassium and sodium levels every 2 days. So far that is all we have been told. Looks like we will not have to be in the clinic at all tomorrow so we will try to find something fun to do for a while to keep her busy. We will update again when we get started. Pray that this is the answer for Samantha to have quality back in her life and ultimately be cured of this disease. Thank you for your continued love and support. Love, Audra, Kurt, Christopher, & Samantha Posted Aug 28 2006, 10:51 PM by admin with no comments

• August 19, 2006

  As Samantha's counts seem to be on their way up we have tentative plans to be on our way next Saturday. Samantha has her first appointment set at the clinic for Monday the 28th. We will be driving an RV there as flying at 36 weeks pregnant doesn't seem like such a good idea. Christopher will stay behind as he starts school this monday and we feel it is important for him to be with his peers (although it is very hard to leave him once again). We are fortunate to have the suppport of our families to help us through and meet some pretty specific needs at this time. We are very hopeful that Samantha will respond to this treatment and she will come home stronger. We ask that you pray for her, that this is the answer, and for Christopher as he starts his new school year with his parents so far away. We thank you and as always appreciate so much all of you for your support & prayers. With love, Audra, Kurt, Christopher,& Samantha Posted Aug 19 2006, 10:51 PM by admin with no comments

• August 15, 2006

  Posted Aug 15 2006, 10:50 PM by admin with no comments